Comments on: Mutant

By: Party Pooper

Party Pooper — Fri, 09 Oct 2009 00:54:39 +0000

this is not a post, but figure you might enjoy the “stand up” article on the site ref’d above. (it’s not mine)
I think the author might soon be posting a link to your site too…
blame on,
carol

By: Party Pooper

Party Pooper — Mon, 28 Sep 2009 19:50:11 +0000

Here I go again, joining the discussion 3 years late, but then cancer does have a certain timeless quality, don’t you think?

First, I want to tell Jodie, who wondered if Twisty’s oncologist “flunked the Bedside Manner class,” that ALL oncologists flunk the Bedside Manner class. I’ll never forget the day chemo made me so sick I passed out sitting up in bed and when I told my onc about it he said, “Are you sure you didn’t just fall asleep?”

But then how would YOU say: “Hi there, I am Doctor Torture, come to amputate your sexual organs then poison you with drugs so toxic that they (oops!) sometimes cancer. And of course you’ll need to sign these papers here saying you understand that you might die no matter what because (blush blush) we’re really not too sure about what we’re doing and no one is really working all that hard on a CURE because we’ve got this whole medical-industrial-complex to think about and…well, it’s complicated. But don’t worry, because we’ll also be giving you, absolutely FREE OF CHARGE, a beautiful Pink Teddy Bear to comfort you and show you how to turn your Cancer Experience into something really good.”

One last thing: dr_igloo is right, they are quick to blame cancer on us, our genes or our life style, instead of putting the nix on the multitude of toxins in our industrialized food, water and air. I mean, how many people do you know who can go without eating, drinking or breathing? Healthy Choice indeed.

I’d love to hear back on how many of you out there know that America has the highest incidence of cancer–and deaths from cancer–in the world?

Men = 1 out of 2; women = 1 out of 3. (epidemic)

You can find this data (and more!) on the American Cancer Society website, the biggest, most conservative Cancer Pappy of them all.
Have you ever heard it on the news?

Party Pooper sez, check out the facts and pass ‘em on.

By: JacqueItch

JacqueItch — Fri, 30 Jun 2006 04:06:32 +0000

Twisty,
I was thinking the other day when I passed a mirror, out of the blue so to speak the thought: “I will someday say goodbye to this. To this arm. To this leg. To all of my body.”
The thought was freeing in a very strange way. As if I also had no ownership, or possession of the body–not really mine. I am passing through it, in a fashion.
I don’t ususally think this way, and I am not that old. But the thought was . . . as you suggested regarding your breast—tinged with a small excitement: What will the next phase look like, what promise does it hold?
The only way to progress is ultimately to say goodbye.

I wish you a very speedy and graceful recovery from the surgery. Prayers and love to you.

By: Julie Stahlhut

Julie Stahlhut — Fri, 23 Jun 2006 02:41:29 +0000

Ouch. This longtime lurker and fan is really sorry you have to walk the surgical treadmill again, Twisty.

As for the hysterectomy/oophorectomy: Been there (endometriosis), and there’s a great site for us hyster-sisters. In fact, that’s what it’s called: http://www.hystersisters.com. Opinions on wider subjects will be politically and philosophically diverse, but everyone’s got this one big experience in common, and the participants are usually quite frank about the subject.

Best wishes with all this.

By: RealThing

RealThing — Thu, 22 Jun 2006 22:28:02 +0000

Dear Twisty,
I’m a new reader to your blog. I found you because (oh yay) we have
breast cancer in common. I have just (on June 16th) had both breasts
removed, plus a full hysterectomy. I feel much like what I imagine
it would feel like to get hit by a truck. The pain meds work well though.
Gender? With no estrogen and no girl parts, I’m getting used to being
more of a Thing. I’m liking it so far. I never was too big on being a
female OR a male. I’m a Female to Thing transsexual. I’m happy
with it so far. I wish there were Thing restrooms and clothing sections
though. And maybe even a Thing sexuality; meaning, I just never
know what’s gonna turn me off. Or on. Could be finding a righteous
tofu ice cream, or could be Wesley Snipes in a dress. I just never
do know. Anyway, hi Twisty. It’s nice to meet another person along
the road who Doesn’t Quite Fit in all the sisterhood Pepto Bismol
Pink bonding. Oh, and the hotflashes are really fun in the summer
heat. Getcherse’f a big ol’ pitcher of iced tea and let the heat rise!!!

Oh, and start eating easy-to-poo foods right from the git go. Pain meds
hysterectomy ain’t too cute. I’m a real pro at enemas now. *BIG* fun! : P

Happy trails, friend, from a Real Thing!

By: ozma

ozma — Thu, 15 Jun 2006 09:24:05 +0000

That’s just wrong. I’m very sorry. I blame the patriarchy but I also want to kick its ass on your behalf.

By: fishwithoutabicycle

fishwithoutabicycle — Thu, 15 Jun 2006 07:11:52 +0000

Another lurker here. I love you Twisty, can’t go a day without checking the site. Best of luck to you. You are awesome.

By: hexyhex

hexyhex — Thu, 15 Jun 2006 00:10:42 +0000

Mostly lurker from down under here…

That’s really nasty news. Good on you for taking the preventative measures, however harsh they are, and I hope that they work to keep you cancer free.

For what it’s worth, my mum had the full reproductive tract removed just after I was born, due to interuterine cancer. She was actually pretty happy to get rid of the bits and pieces, especially when all her friends started having crazy near-menopause issues. You get to skip all that bullshit.

You’re awesome. I’m very much in favour of you not dying.

By: greengage

greengage — Wed, 14 Jun 2006 23:59:05 +0000

Twisty, if you have to spend three months resting up without tacos, I think a lot of us would like to send books and loopy music to you. Is there some way we can set that up?
with love, from a lurker

By: zenobia

zenobia — Wed, 14 Jun 2006 13:56:01 +0000

Another note from across the Atlantic: Good luck Twisty. Focus on your recovery, that’s the thing. It helped me with my 3 ops (breast and uterine cancer). And don’t believe the stories ‘everyone’ tells you: ask why, and what research has been done. E.g. you must rest after Radiation Therapy: I usually played tennis and felt a lot better for it; e.g., Vegetarianism: I don’t know of any serious research; I still eat meat (though I do try to keep it hormone-free). The removal of uterus and tubes, however, means three months of rest (I couldn’t play tennis or bike) but I did go for long walks, which helped. And ask about Ameridex (not sure of spelling since I don’t take it any more, having survived the 5 years) instead of Tamoxofin, which can have serious side-effects. Above all, keep working. I took my computer to the hospital each time — the nurses thought it was hilarious — but writing made me more cheerful. We all look forward to lots and lots more blaming!